Action For Arvin
Action for Arvin is a family and friend fundraiser for Duchenne UK a lean, ambitious and highly focused charity with a clear vision to fund and accelerate treatments and a cure for Duchenne muscular dystrophy.
Action for Arvin was created after our son Arvin at the age of 4 was diagnosed with Duchenne Muscular Dystrophy (DMD) which is one of the most serious genetic diseases worldwide. It is a rare muscle-wasting disease that usually affects boys where the body is unable to produce protein dystrophin that causes progressive muscle damage leading to premature death. Currently, there is no cure for DMD and treatments like steroids are used to delay the progression, but this comes at the price of side-effects. The cure is getting closer and closer with rapid advances in medical science and recent breakthroughs in gene therapy for the first time there is some light at the end of a very dark tunnel.